One of the most amazing things about being in hospital with a wheeze is they gave him a short small course of steroids which act as an anti-inflamatory. These are given in general to treat chest problems I think. Anyway, the steroids he had were the same ones he had back in April to try and stop some of his fits. Anyway as a result of having a short course of steroids William had a fit free week! (Or at least we didn't see any fits, I'm sure there's always plenty going on beneath the surface!) This was a little miracle for us because he'd been waking up upset pretty much every night for a few months having a fit. It's been a good break for him and us but they're gradually coming back now.
While we were in hospital last week we were able to visist the sensory room. Here are some pictures and a video of William enjoying the room:
In general William has been on good form recently. He spends more time awake than before and is developing more personality. He laughs and smiles lots but also is starting to let us know more when he's not feeling very happy. He's showing signs of becoming more aware of us and us playing with him. Here's a little video I captured recently of him enjoying being in his chair for once!
On a final note, I've been asked by a few people recently what William would like for his upcoming birthday! We're very excited here about his birthday as it's such a milestone for him, every birthday we make it to is a big celebration! Sadly a lot of toys are a bit useless to William as he can't really interact with things on his own and needs toys to interect with him more! We're very grateful for any presents Williams receives but think it would be better to get things that he can make use of! I have therefore started putting together a little list of things that we'd like for William that those who wish to get something can refer to! Many of the items are ones we've seen at the hospice or baby group we go to so I know they'll work for him. While there are many smaller items that would be great for him, we'd also like to save up towards a big bubble tube like the one in the photos and video above. These are not cheap pieces of equipment because they're specialist but we think it's be a really lovely thing for William to have in his bedroom. Over time we'd like to save up for different sensory lights and make his bedroom into his own little sensory room!
Anyway, the list we've set up can be found here: http://william.wouldlovethis.com/. I hope it's easy to use. The way it works is you can pick a product you like and then 'promise' to get it. You then need to follow the link to the website to actully buy it. You can also see that we've put a bubble tube on the list so instead of buying the whole thing you can promise to contribute towards it.
Oh and one more thing...we are moving house! We now have a buyer for our house and have had an offer accepted on the house we want to buy. While it's very hard to be leaving the house we love and have worked so hard on we also know it's not the right house for William and he is our priority. The new house has a drive, 4 bedrooms (so we will hopefully never outgrow it), a big room for William so we can have specialist equipment in it, a family bathroom that we can extend and adapt, a wider hallway and easier access into the house. It's still being built so we'll get a say in some of the final decor choices which is nice. It's a big scary thing and it's been very hard coming to this decision so we'd appreciate prayer that it will go through smoothly and that we'll have peace about it all. We are excited though to be hopefully getting a house that will work for William and that will make all our lives much easier once the adaptations have been carried out.
