Well we finally escaped the hopsital at 7 last night after a day of waiting around for not a lot but were glad to get home. Today William has done pretty well. We've had a fair few smiles and his temperature has stayed down without any calpol. The antibiotics he's on are making him poo for england but that's normal, we're just making him sit on a plastic mat everywhere! We've not seen him have any blinky fits today which hasn't happened for a very long time so thats really positive. Hopefully he'll keep it up for the holiday!
We had a call from his consultant today and she wants to repeat his blood tests for his phenobarb levels next week to make sure they are still ok. We also had a call from the eye clinic at the hospital so it looks like he's been referred there now. Because he doesn't really look at us or track anything we are having his eye sight checked. I also managed to speak to the diectician today regarding what we will do when William doesn't start weaning. I can't remember if I wrote before but we should be getting a videofluoroscopy carried out to check William's swallow. Until this has been done we won't really attempt to give him any food of any type. Depending on the results of that will depend on whether he can be offered any food, but at the very least we should be able to give him little tastes of things so long as he doesn't develop oral hypersensitivity due to being tube fed. As I understand it, William can stay on standard baby milk until he is one, when he will probably need to be switched to a nutrionally complete milk as he most likely won't ever take in enough food to take on enough calories. However, the dietician may be able to put him on a higher calorie milk now in order to decrease the amount of milk he needs to make his feeds quicker. She is also going to arrange for us to trial a feeding pump to see if we want one of them.
I'll write more once we've hopefully been on holiday!
Wednesday, 27 April 2011
Tuesday, 26 April 2011
Back we go
William is in hospital AGAIN! This time with suspected tonsilitus. Because of his suppressed immune system we were told to call the hopsital with any temp over 38. This evening he was acting a bit odd, shaky and breathing quickly and when we checked his temp to see if he was cold it was 39 so off we went. When we got there he was really tachycardic but his oxygen levels were alright for once. We saw a rubbish doctor first who could not get a grasp on why were there and seemed convinced it was because william had developed a new type of fits despite me telling him several times hed been having them since he was 2 weeks old. He handed over to a second doctor who came in and asked if we were there because of william's fits. I said no!, she gave me a knowing look and we started again. Anyway theres white stuff in his throat so they're starting him on antibiotics down the tube. If he doesnt tolerate them they will have to go IV. If he keeps his temp down and tolerates oral antibitotics we might get home again.
At least our fave nurse was looking after us tonight so we had a nice long chat with her.
At least our fave nurse was looking after us tonight so we had a nice long chat with her.
Saturday, 23 April 2011
Home again
Thanks to the chilled out consultant on duty today, we are home! His fits have calmed right down, although he is still having them. The blood tests have been carried out and the new dose of phenobarb is acceptable so we can carry on with that and see how we get on. If they come back a lot again we might need another drug. We're going on holiday next week for a bit so we just need a week and a half of him being ok. Watch this space...
Friday, 22 April 2011
Friday 22nd April
I've been meaning to update the blog for ages because we've been having probably the worst week of William's life so far.
So after he came off the steroids William turned into this little smiley lovely boy. We had about a week of loveliness, only to be followed by 8 days of awfulness. A week last Wednesday he started having a lot of fits. Not the infantile spasms but the blinky fits that he had when he was first born. Over the course of a day or two he went from hardly having any to having them every 10-15 minutes when he was awake, if not more. William was soon either sleeping or fitting, and very little else. Over the last week we've spoken to his consultant a couple of times who hasn't been too worried because these fits don't do any long term damage. There's also not a lot she thought we could do about them so we've been struggling along at home. She did prescribe him another anti-epileptic med (vigabatrin) but that's more for the spasms which he's still having a few of. After a few days on that and then an increase in Epilim we reached this morning in a worse situation than ever. We started timing his fits and they were coming at least every 5 minutes. In between fits however he was not really coming round properly and seemed to be fitting mildly. He had also thrown up his whole morning feed and sicked up his tube which we then had to put back down, so all in all we were off to a bad start. Having had over a week of watching him fit every 5-15 mintues we cracked and decided to call the hopsital, if only to be given some reassurance in preparation for going on holiday next week. I could take no more sitting crying watching him fit that often.
On arrival at the hospital we found William's consultant was the consultant on duty which we were very suprised by because she doesnt work Fridays or usually do any ward shifts. At first we felt embarassed because we felt like it looked like we didn't trust her but it quickly turned into a really good thing that she was on duty. Once at the hospital he was still fitting very often. We recorded 11 fits of about 3 mintues each in the first hour we were there. They put him on the sats monitor and found his oxygen levels were dropping too much with each fit and he therefore needed oxygen with each fit. This means for the past week we have had a baby at home who is regularly dropping his oxygen levels - not good.
She discussed the options with us. In the past, phenobaritol has been given in these sort of situations with William but we have reached the point where they want to start weaning him off it because it's not a drug you want to be on long term. They also prefer to save it as a drug to use in an emergency. However the consultant advised that his fits were so serious we had no option but to give William another loading dose (really high dose) of phenobarb and to then increase his maintenance dose (every day dose) and keep him on it more permanently. Should this fail to stop the fits, there are other medicines we can try but they are not considered to be any better than the drugs he's already taking. The other option would be to anaesthetise William and knock him out, thus stopping the fits with the hope that when he was woken up his brain would have effectivly reset itself, but there's no guarantee this would work.
The loading dose was given and William was moved to HDU for monitoring because in the past he has dropped his oxygen levels dangerously low when given the loading dose. He then proceeded to sleep for a few hours but woke up around 5 this evening. He stayed awake for a couple of hours and we only saw him have one or two minor fits during this time which is good. Tonight he will be given his higher maintenance dose and we shall have to wait and see what happens as to what will happen next. They have also had to carry out blood tests to check the level of phenobarb in his blood so we will need to see what results come back from them too. If this doesn't work, I don't know what will happen. He was in such a bad way this morning, I really started to think 'this is it'. When your baby is fitting that much and he's already taking high doses of three powerful anti-epileptics you're not left feeling very optimistic about the outcome. He has definitely made a big improvement today but this is not a one off event, this will happen again and again, it is the nature of his condition. Today I don't feel very hopeful at all about his future. It feels like instead of treating his condition/fits we are now fire fighting it, throwing whatever drug will work at it no matter what the long term consequences are.
I'll update again soon once I have any more news. Night.
So after he came off the steroids William turned into this little smiley lovely boy. We had about a week of loveliness, only to be followed by 8 days of awfulness. A week last Wednesday he started having a lot of fits. Not the infantile spasms but the blinky fits that he had when he was first born. Over the course of a day or two he went from hardly having any to having them every 10-15 minutes when he was awake, if not more. William was soon either sleeping or fitting, and very little else. Over the last week we've spoken to his consultant a couple of times who hasn't been too worried because these fits don't do any long term damage. There's also not a lot she thought we could do about them so we've been struggling along at home. She did prescribe him another anti-epileptic med (vigabatrin) but that's more for the spasms which he's still having a few of. After a few days on that and then an increase in Epilim we reached this morning in a worse situation than ever. We started timing his fits and they were coming at least every 5 minutes. In between fits however he was not really coming round properly and seemed to be fitting mildly. He had also thrown up his whole morning feed and sicked up his tube which we then had to put back down, so all in all we were off to a bad start. Having had over a week of watching him fit every 5-15 mintues we cracked and decided to call the hopsital, if only to be given some reassurance in preparation for going on holiday next week. I could take no more sitting crying watching him fit that often.
On arrival at the hospital we found William's consultant was the consultant on duty which we were very suprised by because she doesnt work Fridays or usually do any ward shifts. At first we felt embarassed because we felt like it looked like we didn't trust her but it quickly turned into a really good thing that she was on duty. Once at the hospital he was still fitting very often. We recorded 11 fits of about 3 mintues each in the first hour we were there. They put him on the sats monitor and found his oxygen levels were dropping too much with each fit and he therefore needed oxygen with each fit. This means for the past week we have had a baby at home who is regularly dropping his oxygen levels - not good.
She discussed the options with us. In the past, phenobaritol has been given in these sort of situations with William but we have reached the point where they want to start weaning him off it because it's not a drug you want to be on long term. They also prefer to save it as a drug to use in an emergency. However the consultant advised that his fits were so serious we had no option but to give William another loading dose (really high dose) of phenobarb and to then increase his maintenance dose (every day dose) and keep him on it more permanently. Should this fail to stop the fits, there are other medicines we can try but they are not considered to be any better than the drugs he's already taking. The other option would be to anaesthetise William and knock him out, thus stopping the fits with the hope that when he was woken up his brain would have effectivly reset itself, but there's no guarantee this would work.
The loading dose was given and William was moved to HDU for monitoring because in the past he has dropped his oxygen levels dangerously low when given the loading dose. He then proceeded to sleep for a few hours but woke up around 5 this evening. He stayed awake for a couple of hours and we only saw him have one or two minor fits during this time which is good. Tonight he will be given his higher maintenance dose and we shall have to wait and see what happens as to what will happen next. They have also had to carry out blood tests to check the level of phenobarb in his blood so we will need to see what results come back from them too. If this doesn't work, I don't know what will happen. He was in such a bad way this morning, I really started to think 'this is it'. When your baby is fitting that much and he's already taking high doses of three powerful anti-epileptics you're not left feeling very optimistic about the outcome. He has definitely made a big improvement today but this is not a one off event, this will happen again and again, it is the nature of his condition. Today I don't feel very hopeful at all about his future. It feels like instead of treating his condition/fits we are now fire fighting it, throwing whatever drug will work at it no matter what the long term consequences are.
I'll update again soon once I have any more news. Night.
Saturday, 16 April 2011
A day in the life of the Carlson's...from an Aunty's perspective
Why hello there...what a privilege to be the first guest writer on the Carlson blog. I'm Helen's sister and that qualifies me to be Williams Aunt. I've been staying with Helen, Steve, William, Tango and Max since Thursday and they have asked me to write a little entry into the blog from my perspective.
I arrived on Thursday evening and William was fast asleep in his cot looking as cute as ever. It's been almost 5 weeks since I saw him last and WOW he has grown.
On Friday morning Steve got up to feed William at 6 and then walked the dogs and headed out to work. Helen and I had some chill time in bed with William before getting up and feeding him again. Helen had planned a busy day for us but William was having quite a lot of fits so we slowed the plans down a little. We headed for a walk in the park, a shop round Waitrose and then a trip to the crocodile park. In the evening Helen and Steve headed off to the theatre leaving me for my first solo baby sitting shift. I was slightly nervous when they left but I took William up to bed and within 10 minutes he was fast asleep.
Today William was visited by Steve's cousin Andrew and his wife Sarah. We then took a family walk and then Helen and I had some sister time in town.
You may be thinking why on earth I'm boring you with a description of our last two days but I wanted to share the normality that Helen and Steve try and bring to their lives and I have found that amazing. I've been thinking this weekend how easy it would be to just sit in the house with William..especially over the past few days whilst he's been having a lot of fits. Helen and Steve have developed this ability to just get on with it, regardless of the fact that William is a really hard baby to care for, he's currently on 7 different medicines and that doesn't count the multiple doses of most medicines.
I arrived on Thursday evening and William was fast asleep in his cot looking as cute as ever. It's been almost 5 weeks since I saw him last and WOW he has grown.
On Friday morning Steve got up to feed William at 6 and then walked the dogs and headed out to work. Helen and I had some chill time in bed with William before getting up and feeding him again. Helen had planned a busy day for us but William was having quite a lot of fits so we slowed the plans down a little. We headed for a walk in the park, a shop round Waitrose and then a trip to the crocodile park. In the evening Helen and Steve headed off to the theatre leaving me for my first solo baby sitting shift. I was slightly nervous when they left but I took William up to bed and within 10 minutes he was fast asleep.
Today William was visited by Steve's cousin Andrew and his wife Sarah. We then took a family walk and then Helen and I had some sister time in town.
You may be thinking why on earth I'm boring you with a description of our last two days but I wanted to share the normality that Helen and Steve try and bring to their lives and I have found that amazing. I've been thinking this weekend how easy it would be to just sit in the house with William..especially over the past few days whilst he's been having a lot of fits. Helen and Steve have developed this ability to just get on with it, regardless of the fact that William is a really hard baby to care for, he's currently on 7 different medicines and that doesn't count the multiple doses of most medicines.
I know Helen and Steve struggle and find it hard at times but as I spend more time with the three of them I've realised how adaptable they are and I think my sister and brother (in law) are a lot stronger and braver than they think they are and definitely more then I could ever be!!
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| Willis and I meeting the crocodiles! |
Monday, 11 April 2011
Friday, 8 April 2011
Chicken Pox Update!
Helen back now...so we didn't have any blood tests done, not sure why that was said on the phone. Got to the hospital and they wanted all the details of the contact that had been made. The consultant then called the virologists at Addenbrookes and the team of doctors there had to discuss what action to take. I asked the doctor what would happen if he caught it and he said it would be very serious and he had seen children die when in the same position. Little more serious than we first thought!
Chicken pox is spread either through touching or through droplets in the air (ie. through coughing and sneezing) whereas shingles can only be passed on by the uninfected person coming into contact with the affected person's blisters. Had the person had chicken pox or had blisters on their hands, then William would have had to stay in hospital and been given some immune boosting injections for who knows how long! However, it seems like they don't like to give the injections to very young children unless absolutely necessary. Instead they decided to err on the side of caution and prescribe William an oral medicine which he will take for a week commencing next week (one week after coming into contact with the affected person). Should William develop chicken pox, the medicine will hopefully lessen it's impact. Thankfully the steroids finish next week so we'll only have one day on 7 medicines, then back to 6 for a week, then down to 5!
As I think Steve mentioned in his earlier post we now have the difficult task for the next three months of deciding how to live! It's obviously vital that we do all we can to not knowingly expose William to the virus but not seeing anyone for three months would certainly drive me round loopy bend. The baby groups have finished for Easter which gives us a chance to have a think about them. We think our attitude will be to avoid anyone we know has the virus and be vigilant in checking William for signs of developing the pox. Where other children are present we will just try and make sure they don't sneeze on him and we will limit who can have any physical contact with him. We were told that people who had had chicken pox were pretty safe so if you're in that category you're in luck (or not in luck as Mr Boddy might say)!
So we'd like to say, if you are likely to come into contact with William please have a think and let us know whether you or your family have been in contact with someone with chicken pox within the last three weeks. If so, we shall then promptly run away from you! Likewise, if you have been in contact with William, then someone you have been in contact with recently develops chicken pox please let us know. I believe you can have the pox for up to three weeks before developing any pox. To put it simply, if anyone you know gets chicken pox or shingles tell us so we can avoid you like the plague :-)
I personally am not overly worried about this, it's not like chicken pox is all that common and I just have a peace about it. Please do pray for wisdom though for us in knowing what to go to and what not to go to! And of course for God to perhaps create a little invisible virus barrier around William!
William has continued to be super smiley today which is fab. It feels like he's developed a little personality in the last few days and we shall treasure every day of it because the fits or medicines can change that any time! His spasms are gradually getting worse again and he's been a bit upset with them today. They are still much shorter than before but they are definitely getting worse. I'm pretty sure the doctors have mentioned trying him on a drug called Vigabatrin and I've heard of another drug called Topamax which I'd like to ask the consultant about.
Anyway, we're off to bed shortly once William has finished having his milk. There's never a dull day on this blog!
And to finish...a picture of William asleep on his change mat. We have to change his nappy when we go to bed because he wees too much but he stays nice and asleep for it as demonstrated here...
Chicken pox is spread either through touching or through droplets in the air (ie. through coughing and sneezing) whereas shingles can only be passed on by the uninfected person coming into contact with the affected person's blisters. Had the person had chicken pox or had blisters on their hands, then William would have had to stay in hospital and been given some immune boosting injections for who knows how long! However, it seems like they don't like to give the injections to very young children unless absolutely necessary. Instead they decided to err on the side of caution and prescribe William an oral medicine which he will take for a week commencing next week (one week after coming into contact with the affected person). Should William develop chicken pox, the medicine will hopefully lessen it's impact. Thankfully the steroids finish next week so we'll only have one day on 7 medicines, then back to 6 for a week, then down to 5!
As I think Steve mentioned in his earlier post we now have the difficult task for the next three months of deciding how to live! It's obviously vital that we do all we can to not knowingly expose William to the virus but not seeing anyone for three months would certainly drive me round loopy bend. The baby groups have finished for Easter which gives us a chance to have a think about them. We think our attitude will be to avoid anyone we know has the virus and be vigilant in checking William for signs of developing the pox. Where other children are present we will just try and make sure they don't sneeze on him and we will limit who can have any physical contact with him. We were told that people who had had chicken pox were pretty safe so if you're in that category you're in luck (or not in luck as Mr Boddy might say)!
So we'd like to say, if you are likely to come into contact with William please have a think and let us know whether you or your family have been in contact with someone with chicken pox within the last three weeks. If so, we shall then promptly run away from you! Likewise, if you have been in contact with William, then someone you have been in contact with recently develops chicken pox please let us know. I believe you can have the pox for up to three weeks before developing any pox. To put it simply, if anyone you know gets chicken pox or shingles tell us so we can avoid you like the plague :-)
I personally am not overly worried about this, it's not like chicken pox is all that common and I just have a peace about it. Please do pray for wisdom though for us in knowing what to go to and what not to go to! And of course for God to perhaps create a little invisible virus barrier around William!
William has continued to be super smiley today which is fab. It feels like he's developed a little personality in the last few days and we shall treasure every day of it because the fits or medicines can change that any time! His spasms are gradually getting worse again and he's been a bit upset with them today. They are still much shorter than before but they are definitely getting worse. I'm pretty sure the doctors have mentioned trying him on a drug called Vigabatrin and I've heard of another drug called Topamax which I'd like to ask the consultant about.
And to finish...a picture of William asleep on his change mat. We have to change his nappy when we go to bed because he wees too much but he stays nice and asleep for it as demonstrated here...
More details ...
I am writing this as I speak to Helen on the phone. She is still at the hospital waiting to hear some news from the virologists. Apparently, not to wanting to scare anyone, a child can die from chickenpox if they have not got an immune system, so the doctors are being very very cautious about this.
Please pray that William will be clear of any virus, and that for the next few months we will be able to keep him away from chickenpox. This is a more worrying time than Helen or I imagined. We don't want to become hermits yet at the same time the safety of William is obviously so important.
Thank you.
Very quick update
Hello readers - this is Steve (and this is my very first blog entry). I am just writing to let you know that Helen and William have had to pop back to our second home this afternoon for a blood test.
As you know, William is on steroids and as such is immunosuppressed. It turns out he has unknowingly been in contact with someone with shingles (which is closely related to chickenpox). Although this person did not hold him we rang the hospital and they asked us to take him in for some tests.
Hopefully it will not result in an overnight stay - and hopefully they will be let out soon as it is such a nice day and not one that you want to waste sitting in a hospital ward for too long. We were there on Tuesday for long enough. Watch this space for further developments ...
Wednesday, 6 April 2011
A better day
Today has been a much better day! Thank you so much to everyone who read yesterday's blog and sent us messages of encouragement, it really encouraged us!
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| Tractor fun! |
Today it has been so lovely and sunny and William has smiled more than ever before! Two gifts from God! William and I had a lovely walk to see some of nana's friends this morning. It's a group of lovely ladies of all different ages who meet every week to pray and study the Bible and they really are William's prayer warriors! We then had a lovely lunch under the tree in nana and grandpa's garden before heading off to the crocodile farm for cake in the sun! William enjoyed playing with his friend Rosie on the tractors and slide.
Now Steve's birthday and mother's day have passed we can officially launch photos of what William has been up to! There's quite a few photos so I've put them on facebook along with some photos taken recently of us out and about. I've said this before, but you do NOT need a facebook account to view these photos. Just click on this link and enjoy!
Tuesday, 5 April 2011
Yet another hospital birthday
Usually when I write the blog I write it when I'm in a good mood because no one really likes a moaner do they? But today I'm writing the blog in a rubbish mood because I want to write down what it feels like on a rubbish day.
Today is Steve's birthday. Having spent our wedding anniversary and my birthday in hospital, was it too much to ask that we could have one day with no drama? Apparently so. The day started great with William giving us the first proper smiles we've seen in ages while Steve opened his presents. We then made it out for a lovely meal with Steve's mum and dad. Then, however, when we went to feed him this afternoon it all started to fall apart a bit. Earlier this morning William coughed up some brown phlegm, but we tried not to worry and thought we'll see how he goes. Then when we aspirated for his feed this afternoon (withdrew stomach contents to check the position of the tube) we got a load of brown liquid which is not good! We called the hospital and as he's currently on their watch list as he's on steroids so they called us in. They don't really know what was wrong but they think the end of the tube has irritated his stomach lining causing it to bleed a bit. They kept us for a couple of hours so we could give him another feed and see if it had cleared which it seemed to. However, they then made us wait another two hours for a prescription for a new medicine which does exactly the same as a medicine he's already on and will be completely pointless. Then before we left we changed William for bed and he proceeded to throw up everywhere all over his baby grow. This now brings his medicine total to six, two given once a day, two given twice a day, one given three times a day, and one given five times a day. They told us when we there that the steroids put William at risk of having a big bleed which thankfully we didn't know before or we might have panicked. We also found out that William will be considered immunosuppressed for three months after finishing the steroids. This means for another three and a half months we have to try and ensure he doesn't come into contact with chicken pox and take him into hospital if he gets a high temperature. We previsouly thought once the steroids finished we were safe.
We are now home and William is in bed and we are finally grabbing some dinner at 9pm. Maybe this isn't the worst day in the history of the world, but right now it feels so unfair that we couldn't have one day to celebrate and forgot about all the rubbish stuff. We don't have the luxury of thinking, 'well it's hard right now but it'll get better', because it won't get better. We can't look forward to William walking or talking or any of those things because he probably won't. Our hope at the moment is that he doesn't forget how to smile for good.
I've heard people before talk about how lonely it can be having a baby, but having a baby like William feels ten times worse. Most baby groups are in the morning, but by the time William has had 2 morning feeds we struggle to leave the house before half ten. If I decide to feed him out at a baby group I need somewhere to sit him upright, a table for all his stuff and I have to concentrate on what I'm doing which doesnt really lend itself to being friendly. William is hard to hold for long periods of time because he has such poor control over his body. Some baby groups have nowhere to put a baby down making it a bit inpractical. Most mums sit talking about things I have no experience of, even little things like getting a baby to sleep are difficult to talk about. People talk about the importance of a bedtime routine so babies recognise when they should sleep but we have no idea if William even has the ability to recognise something in that way, plus his medicines interfere with his sleep so much (mostly in a good way) that we've never had to worry about getting him to sleep. It feels like a lot of people are too afraid to ask why William has a tube coming out of his nose for fear of causing offence and so often don't want to come near you. And the thing is that this is just going to go on. We will always be in the minority and we will rarely find people who have been through what we go through.
I know this is a miserable post but people often comment about how well we are coping and sometimes we don't feel like we do cope. Sometimes it feels like life has got to change because it feels like an emotional rollercoaster that we can't bear for the rest of our lives. I often say to Steve, what does it mean when people say 'you are coping so well'. What is coping? Yes, we still continue to do as many things as we can and most the time we don't cry but some of the time we do and at the moment it feels like too often.
Anyway, I'm not sure what the point of this post is. I just needed to write it. Soon I'll write something nicer and put some nice photos up. Good night x
Friday, 1 April 2011
Friday 1st April
Well what a tiring couple of days it's been. William seems to have caught a cold/cough, is possibly teething and is pooing for england all at once! Of course, we're slightly paranoid after being told we have to be careful while he's on the steroids because they will suppress his immune system. We've been checking his temperature several times a day on alert for anything over 38. Earlier this evening we got a reading of 38 but before panicking and calling the hospital (as we were told to do) we waited half an hour and checked again by which time it'd gone down. Think he was a bit warm from just coming out the car!
Yesterday William would not go to sleep in the day at all no matter what I tried. Being a poorly baby with no sleep is not a good mixture so we had lots of tears yesterday afternoon and evening. Thankfully he went to sleep about 7. We then barely heard from him all night apart from the odd cough. We decided to let him sleep this morning to catch up but by ten he was still fast asleep so we got him up for a feed. He then continued to pretty much sleep all day apart from when he would barely wake up to make little poorly person whimpering noises. His cold has been a bit better today then yesterday but his cough has been worse and his nappy activity is definitely worse! Boy am I fed up of the smell of poo today! He's just going down for the night and usually stays asleep once put to bed so hopefully after a good nights sleep he'll feel a bit better. If he doesnt improve much tomorrow we might call the ward just to make sure they're not worried because of the steroids.
On an extra note, we think Max is turning into our own little Skippy the bush kangaroo. He has been known to sit and cry next the pushchair when William is in it and stirs as if to tell us that William has woken up. This evening Steve heard Max whining to went looking for him. He found him in William's room sitting next to the cot so Steve had heard him through the baby monitor. William had fallen off his baby pillow and although he was still asleep it was as if Max had seen him move and was telling us. Clever little chappy! Can't train him to stay off the sofas when we're out though so maybe not that clever. No sooner have I typed that than the same sort of thing happened again. We heard William stir on the monitor then heard Max whining on the monitor. We went upstairs to find Max sitting by the cot waiting for us expectantly so I lifted Max up to show him William was ok.
Anyway, here's the photos now...
Yesterday William would not go to sleep in the day at all no matter what I tried. Being a poorly baby with no sleep is not a good mixture so we had lots of tears yesterday afternoon and evening. Thankfully he went to sleep about 7. We then barely heard from him all night apart from the odd cough. We decided to let him sleep this morning to catch up but by ten he was still fast asleep so we got him up for a feed. He then continued to pretty much sleep all day apart from when he would barely wake up to make little poorly person whimpering noises. His cold has been a bit better today then yesterday but his cough has been worse and his nappy activity is definitely worse! Boy am I fed up of the smell of poo today! He's just going down for the night and usually stays asleep once put to bed so hopefully after a good nights sleep he'll feel a bit better. If he doesnt improve much tomorrow we might call the ward just to make sure they're not worried because of the steroids.
On an extra note, we think Max is turning into our own little Skippy the bush kangaroo. He has been known to sit and cry next the pushchair when William is in it and stirs as if to tell us that William has woken up. This evening Steve heard Max whining to went looking for him. He found him in William's room sitting next to the cot so Steve had heard him through the baby monitor. William had fallen off his baby pillow and although he was still asleep it was as if Max had seen him move and was telling us. Clever little chappy! Can't train him to stay off the sofas when we're out though so maybe not that clever. No sooner have I typed that than the same sort of thing happened again. We heard William stir on the monitor then heard Max whining on the monitor. We went upstairs to find Max sitting by the cot waiting for us expectantly so I lifted Max up to show him William was ok.
Anyway, here's the photos now...
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| Stretching out in his cot |
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| Playing on his new surf board |
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