EEG

Today William has been for his EEG. We won't hear any feedback from it until next week when he see his consultant. We find a lot of people have never heard of an EEG and often think we mean and ECG so (with William's permission) we took some photos during the EEG!

21 sensors in place

new type of wig




bandage to hold them in place

 
An EEG looks at the electrical signals being sent by the brain and can pick up unusual activity. From this the doctors can hopefully see what type of fits William is having. Unfortunatley he decided to sleep through it which wasn't so hopeful but hopefully the results will be useful.

After nearly a week of no sick it's come back again! We had another sicked up tube today but it was no trouble for tube passing extraordinaire - daddy C! We're hoping to talk to the consultant about this next week some more. He's putting weight on well so that's not a worry - the biggest problem is that it makes going out seem a bit daunting. When he is sick, he's usually really sick (and I mean really sick) and it's usually accompanied by some serious coughing and gagging, and although we're used to it I worry what other people think! Just need to get over it!



I've just been watching a tv program about a lady who adopted 8 children, 7 of whom had downs syndrome and 1 who had other compex needs (if you're interetested you can read a bit more here http://www.bbc.co.uk/insideout/northwest/series2/downsyndrome_adoption_children_help_advice_family.shtml). A lot of the time you speak to the medical people and they can be very serious and sombre about everything and make it all seem quite depressing and scary. This remarkable lady has just made it her life to create this family and to her it's just what she does. She makes it seem like it's not a big deal. That's what I want to be like (but with less children)!

P.S. There are some new photos on the facebook album. Follow the links from the 'Photos' page if you're not on facebook to see them.